You Are Not Alone

Your support network may include:

  • Your child’s medical team
  • Therapists and early-intervention professionals
  • Social workers and family-support specialists
  • Parent and caregiver communities
  • Advocacy and Support Organizations – Hope for HIE

Hope for HIE

Hope for HIE is the premier global advocacy and support organization for families affected by neonatal and pediatric-acquired hypoxic ischemic encephalopathy (HIE). The organization provides comprehensive programs and services for patients and families across the lifespan, and across all outcomes and impacts. Hope for HIE first began as an online support group back in 2011, then organized as a nonprofit in 2013, and has grown to connect and support thousands of families worldwide advancing awareness, advocacy, education, research and support to ensure no family faces HIE alone.

You Can Feel Prepared

Whether you are learning about HIE for the first time or looking for information as your child grows, reliable information and the right support can help you feel more prepared.

The information on this website is for general educational purposes and does not replace advice from a qualified healthcare professional. Speak with your child’s healthcare team about diagnosis, treatment, development, and ongoing care.

If you’re interested in learning more about the science behind HIE, please click here.